By John Bukowski Galt Latest Activity March 29, 2013 at 10:17 pm Views 2,660 Replies 5

John Bukowski Galt

What kinds of testing helped you and your doctor to rule out other conditions and also determine type of migraine and other things like that?

I've only ever had "talks" with my doctor. He's never run a single blood test, imaging study, etc. It was fine when my migraines weren't that bad, but, now I'm waking up every morning with a headache or a full-blown migraine and it's getting distressing. I don't want to have to pay for all the testing and such, but, if it can help, then it would be worth it.

So, what tests have you undergone?

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Replies (5 replies)

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  • kwohld89
    kwohld89 May 11, 2016 at 7:26 pm   

    OMG. I've had them since I was 6 and my mom has taken me to just about every doctor in the St. Louis area. I get them roughly every 2-2 1/2 months, for 4-5 days at a time and usually can not function at all on the first 2 or 3 days, the first of which I throw up literally about 20 times or more. I have not noticed any possible triggers. I know it isn't related to food, weather, smells, or anything like that, I think it must be hormonal. They actually occur while I'm sleeping and sometimes I actually DREAM about being sick and then I wake up and I'm sick.

    I was of course very young when I went to some of these specialists but the ones I do remember are: hearing test, MRI, CT scan, blood test, urine test, some sort of test I did with an ENT that has to do with inner ear balance and equilibrium, thyroid, and as I said I'm sure there were more but I can't remember!!

  • furstofew
    furstofew April 8, 2013 at 3:30 pm   

    Lisa it has brought me to tears thinking of you in all that pain… Which has made me almost loose control of my own. as a therapist I give lessons teaching mindful control pain dissipating it with relief, a skill set of which could help you control the migraine or at least help you to find a comfortable place to help balance the pain. I have enjoyed doing this every day for nearly twenty years . No effort required

  • lissa907
    lissa907 March 31, 2013 at 9:12 pm   

    I've had migraines for over 17 years, and was just recently diagnosed with cluster headaches. Like you, I had only ever had talks wit my doctor, and lots of playing with my medication. Up until a week ago, I had only had a head CT done. With my current med treatment plan not working and new symptoms arising, I've undergone bloodwork and will have a brain MRI with contrast in two days. The blood tests were a metabolic panel (which found that I'm hypokalemic), a SED rate, and a TSH, of which my thyroid levels were off and I now have to have more thyroid testing done. I'm being sent to a neurologist for further workup and also because my pcp feels she can't do anything more for me.

    Other tests that can be done to rule out other conditions are nerve studies, EEGs, arterial dopplers, along with bloodwork, CTs & MRIs.

    Hope this helps!

  • John Bukowski Galt
    John Bukowski Galt April 8, 2013 at 12:35 pm   

    Thank you so very much for your reply! This is extremely helpful! Next time I see my neurologist, I'm going talk to him about testing that we can do. I'm just paranoid that we're missing something big and labeling it as "just migraines".

    Thanks for your input :)

  • CatLoverGGma
    CatLoverGGma May 22, 2013 at 12:22 am   

    Hi there - I'm new here but couldn't help wanting to make a few comments.

    First, & foremost - there is no such thing as "just a migraine". If I understand right, your doctor has actually made you feel as though migraines were ordinary? Please correct me if I'm wrong.

    Next, you might want to look for a book (mass market paperback) The Migraine Brain by Carolyn Bernstein, MD. This book has helped me so much, especially to realize I wasn't alone.

    The best advice my regular doctor gave me was to keep a Migraine Diary. Just a small spiral or steno notebook will do. Mine has been fairly simple - refined according to my needs, which include not only migraines but allergies too. I keep track of when each migraine starts, what meds I take, if I lay down, or wheteher I am even at home. It includes when I eat & what I eat. It's very important you do not skip meals. You don't have to have large meals but you should eat every 3-4 hrs, if possible, even if it's only an apple, yogurt, etc. I have been able to narrow down what my triggers are and avoid them - for the most part. Luckily, chocolate is not a trigger for me. I can have it anytime except when I have a migraines - it does intensify the symtoms for me.

    Another big trigger is sleep, or the lack thereof. That's my biggest trigger. Still wrestling with that one. It all goes into my diary.

    Also included are the weather conditions that day - this can affect migraines, as well as allergies. Also exercise - I'm not talking jogging for miles or climbing mtns. I just walk a little each day (I'm a fair-weather walker). Anyway, this diary helped when I found my neurologist. Everything that he questioned me on was right there for him. Now, I just transfer my doctor's info onto a calendar & give it to him each time I see him.

    Almost forget, the tests I had done were to check my thyroid, bloodwork to check my bloodsugar & cholesterol levels, regular eyetest & dental checkup to rule out either of these as a trigger. Because I had the diary we could rule many things out. It showed clearly some of the triggers I hadn't realized affected me.

    Hope this helps you. Hang in there, it does get better. I went from having a migraine about 24 days each month (rebound migraines with only 6-7 pain-free days) to only 6-7 migraine days each month. Let us know how it's going.