Any migraine sufferers with an autoimmune disease?

By Terrilynne79 Latest Activity February 28, 2012 at 9:42 pm Views 13,757 Replies 10 Likes 1

Terrilynne79

So I find that I have an autoimmune disease (which we are now determining if its secondary to another or stand-alone). I'm doing my reading to educate myself and I'm finding that a common symptom that isn't always associated with these disorders is headache. But because it isn't a telltale symptom that points a doctor to autoimmune disease, there's just not a lot of clear information there. The itheory is that they can trigger true migraines because it can affect your vascular system causing inflammation of your blood vessels.

I personally suffer from migraines and another type of chronic headache. This latest severe migraine left me exhausted and achy all over which would be fitting but it never went away. It almost seems the migraine itself (or stress on my body from it and getting dehydrated) triggered a flare up in my other condition.

Does anyone here suffer from an autoimmune disease? If so, does it affect your migraines or vise versa?

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Replies (10 replies)

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  • Susy888
    Susy888 September 10, 2013 at 10:11 am   

    I had migraines since early age. I am now 67. A few years ago I developed microscopic colitis, an autoimmune disease. I believe these 2 diseases interact. Flareups with the colitis are accompanied by very frequent migraines. I have not found any meds that help my migraines. I take no meds for anything else. My trigger for migraines used to clearly be hormones, but at my age, that is not the case. I do think inflammation in the body is a root cause for both, although I know migraines have more complications at the basis. I am going to try to be stricter about an anit inflammatory diet. I also have osteo arthritis, and that is getting worse.

  • deltaforce
    deltaforce April 23, 2013 at 3:35 pm   

    I don't know if you have any update to report. If there is any, I would like to hear.

    You do not mention about your auto-immune condition and what are you taking for migraine. Because the medicine that works for you and the one that does not can tell a lot about migraine pathophysiology.

    I have Ulcerative colitis (auto-immune condition) and migraines. Both started around the same time. Over the period of time, incidences and severity of migraine increased. The only kind of medication that works for my migraine is NSAID (points to the fact that there is inflammatory condition underlying these migraines) but classical migraine meds like triptan derivatives do not work (that tells it is not classical migraine that majority of folks suffer).
    Ulcerative colitis also has underlying inflammatory cause so I suspect that both of them are connected but I am yet to meet a medical professional that can connect the dots. They do not deny my theory but they do not do what to do about it. I have tried every triptan in the market but no effect whatsoever.

    I am currently taking verapamil and nabumetone for my migraines but I wish that I do not get migraines at all. So far no luck.

  • toadwii
    toadwii September 28, 2012 at 11:26 pm   

    Me to

  • myobloc2
    myobloc2 September 20, 2012 at 4:09 pm   

    I became disabled March 2011 with CNS Lupus in which I also suffer with Hemiplegic Migraines. There has been a direct correlation between autoimmune disease processes & migraine sufferers. My Lupus manifested into my Central Nervous System which resulted in Lupus Cerebritis(vasculitis), lupus headaches along with my migraines. I was in healthcare for almost 30 years & now due to cognitive issues, memory loss, daily pain etc..no longer able to work. I have tried almost everything for treatment with no success, as there is no cure for my type of lupus. However, I have heard of a NEW. treatment being used called Low Dose Naltrexone or LDN. Faith keeps me wanting to see another day when it gets unrelenting. Keep your chin up!

  • llee02@comcast.net
    llee02@comcast.net September 21, 2012 at 8:19 pm   

    So sorry to hear your story! Your words are from a fighter! Stay strong always. I to suffer from a autoimmune disease and migraines. I believe there may be a link. Going to my first appointment with a neurologist next month. 6 years of Meds that never worked. Hopeful !! Lupus runs in my family and defiantly will ask for test. Keep your positive thinking up!

  • ladytrolley
    ladytrolley May 22, 2012 at 8:35 am   

    I too have autoimmune disease and I feel the same. Right now I am treating my migraines with Botox shots into the forhead, head and neck. It works for about 2 and a half months. You can only have this every 3 months so you will suffer migraines for about 2 weeks. I have n appointment with my PCP tomorrow and will ask him about that. I will let you know what he says.

  • dre781
    dre781 April 22, 2012 at 11:47 pm   

    I am new to this site but I have heard that autoimmune can be cause from too much lead or mercury base teeth feeling in our mouth that when we eat brush our teeth can cause release of thoe chemical into our body's causing autoimmune

  • ladytrolley
    ladytrolley May 22, 2012 at 8:40 am   

    I have Hoshimotos thyroiditis whic means that my thyrod is destroying it self. I was diagnosed 15 years ago and they have to test it every couple of months because they can't stablize the thyroid. He changes my meds usually every time my tests are done.

  • dre781
    dre781 April 23, 2012 at 2:12 pm   

    My triggers where diet soda , sugarless chewing gum any thing with fake sugar basically ,,, any small amount will cause me a two week relapse of higher dose of topamax Etc etc

  • laura2222
    laura2222 February 29, 2012 at 1:48 pm   

    Hi,I do have a autoimmune disease too! I have had this for the past 3 years.my migraines have been more active during this time.,but I will say I have had migraines for over 20 years,so I to wonder if my other pains could trigger a migraine. I feel that it does make sense that if your body is struggling to keep a balance,it very well could trigger a migraine.the problem is that there are so many triggers .I have not found mine,so at times I start to think maybe it's my disease.I hope you are feeling better!